Advocacy, Education, Research
Patient Empowerment Network
Patient Empowerment Network (PEN) is a nonprofit organization who’s mission is to fortify cancer patients and care partners with the knowledge and tools to boost their confidence, put them in control of their healthcare journey, and assist them in receiving the best, most personalized care available to ensure they have the best possible outcome. PEN takes patient education a step further through educating, then ACTIVATING cancer patients and their care partners to become shared-decision makers with their healthcare teams. With a wide array of content from leaders in oncology, PEN’s programs provide free informational and educational resources that are accessible online 24/7/365. PEN helps enhance patient health literacy to enable shared decision-making and resources to empower patients and care partners at every step of their cancer journey.
Read More...Patient Power
Patient Power is devoted to supporting cancer patients, care partners and their loved ones through education and advocacy—empowering them to get the right treatment at the right time, while engaging the best healthcare team possible. Patient Power interviews top medical experts and researchers to offer the most current findings and information, as well as personal accounts from dedicated advocates and inspiring, knowledgeable patients. They are committed to helping each person approach their illness by fully understanding their individual diagnosis, to seeking the best care, to getting second or third opinions, or to consider a clinical trial.
Read More...National Coalition for Cancer Survivorship (NCCS)
NCCS’ mission is to advocate for quality cancer care for all people touched by cancer. Founded by and for cancer survivors, NCCS created the widely accepted definition of survivorship and defines someone as a cancer survivor from the time of diagnosis and for the balance of life. The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors. CPAT provides cancer survivors and caregivers with tools and training that build upon their personal experiences to become effective advocates to improve cancer care.
Read More...A Kid Again
A Kid Again is here for your child, for your family, and we are here for you. We make life for families caring for a child with a life-threatening condition “normal” again by helping them gain back moments of positive, family-shared experiences and memories.
Read More...Rare Patient Voice
Why Sign up with Rare Patient Voice? Who knows better than you about your journey and experiences? We connect you with researchers who are developing products and services which can help you and others with your condition. These researchers need patient input so that they develop products and services that have a meaningful impact on patients’ lives. Over the past seven years, Rare Patient Voice has paid patients over $4.8 million dollars. How will I be paid? You will earn $100 per hour for participating in studies. We pay by check to ensure patients can use their compensation in any way they wish. Sign Up Today!
Read More...Well Beings Studio
Well Beings Studio enhances the emotional well-being of families impacted by cancer through arts-based resources and workshops. Check out our Arts and Emotional-Well Being Events and Activities for children, teens and families during COVID-19: http://wellbeings.studio/blog/ . For families, find our downloadable resources at: www.littlegreenmonster.org.
Read More...Dean Paras Foundation
The Foundation’s dual purposes are to fund Neuroendocrine Cancer Research and to fund a Graduate Fellowship in BioMedical Engineering at Vanderbilt University. Constantine “Dean” Paras, was a Ph.D. student and teaching assistant in the Department of Biomedical Engineering. While at Vanderbilt, Dean and his team had developed and produced a device for use in parathyroid and thyroid surgery that has been patented and is being produced for use in operating rooms.
Read More...Global Resource for Advancing Cancer Education
GRACE is a nonprofit organization that was developed as a means of improving the overall medical care for cancer patients by democratizing cutting edge information on optimal cancer management and providing it directly to patients. We recognized that while there is an overwhelming amount of new information available to physicians, actually more than they could integrate, patients and their families often have a deep interest in their own care and often have the time and motivation to ensure that they are receiving the best treatment possible.
Read More...The Ruth Cheatham Foundation
The Ruth Cheatham Foundation is an advocacy, non-profit organization established to honor and continue the work of a beautiful wife, mother, aunt, and friend Ruth Cheatham. Ruth had a passion for literature, education, and mentoring the youth of North Texas. We strive to continue with that mission by providing educational devices to those battling through treatment and much needed financial support that survivors need to complete their college education.
Read More...ASCP Patient Champions
The ASCP Patient Champions program empowers patients, caregivers and advocates through education and awareness about diagnostics, lab tests, and follow-up care through the real-life stories of patients, our Patient Champions.
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